Data Initiative
Community Seizure Data Initiative
Your tracking data could help every pet with epilepsy
A PetSeizureCare.com initiative
The problem we want to help solve
Most veterinary epilepsy research is based on small studies — typically 50 to 200 animals — conducted at university hospitals. These studies are invaluable, but they capture only a narrow slice of the real-world experience of managing seizures in companion animals.
Meanwhile, thousands of pet owners around the world are already tracking detailed seizure data every day: frequency, duration, medication responses, triggers, recovery patterns, and more. This data sits in notebooks, spreadsheets, and printed logs — useful to individual vets, but invisible to the broader research community.
What we are building
PetSeizureCare is working to build one of the largest community-contributed pet seizure datasets in veterinary medicine. Our goal is to collect, anonymize, and analyze structured seizure tracking data — then publish the findings freely for the benefit of every pet owner and veterinary professional.
Seizure frequency trends
How do seizure patterns vary across breeds, ages, and diagnosis types? What does "typical" actually look like for different populations?
Medication response patterns
Which medications show the strongest real-world response rates? How long does it typically take for a medication to show effectiveness?
Trigger correlations
Which environmental, dietary, and lifestyle factors are most commonly associated with seizure events across large populations?
Rescue medication effectiveness
How often does rescue medication successfully stop seizures in real-world home settings? What factors affect success?
Recovery and quality of life
How do recovery patterns change over time? What does long-term seizure management actually look like for most families?
Drug resistance indicators
What patterns emerge in pets who do not respond to standard medications? Can early indicators help guide treatment decisions sooner?
Every seizure you document is a data point that could help someone else's pet.
How it works
If you choose to participate, the process is simple:
- Track your pet's seizures using the PetSeizureCare Seizure Log or any structured tracking method. Consistency matters more than perfection.
- Submit your data through our secure online form (coming soon). You choose exactly what to share.
- We anonymize everything before any analysis. Your name, your vet's name, your location — none of it is ever stored or published.
- We analyze and publish findings freely on PetSeizureCare.com and pursue peer-reviewed publication in veterinary journals.
Your privacy
What data is most valuable
You do not need to be a researcher. You do not need special tools. The structured fields in the PetSeizureCare Seizure Log are exactly what we need. The more consistently you track, the more useful your contribution becomes.
What we will do with the results
Everything we learn will be shared freely. This is not proprietary research. This is community science.
- Published on PetSeizureCare.com — plain-language summaries of findings, accessible to every pet owner.
- Submitted for peer review — we will pursue publication in veterinary neurology and companion animal journals.
- Shared with the veterinary community — findings will be made available to veterinary neurologists, general practitioners, and veterinary education programs.
- Used to improve our resources — insights from the data will inform future editions of our caregiver guides, seizure logs, and educational content.
Why your contribution matters
- Large-scale real-world data does not currently exist in veterinary epilepsy research
- Your daily observations capture information that clinical settings cannot
- Patterns only emerge from large datasets tracked consistently over time
- Every contribution makes the dataset stronger for every pet owner who comes after you
- The findings will be published freely — no paywalls, no restricted access
Frequently asked questions
Do I need to use the PetSeizureCare Seizure Log?
No. Any structured seizure tracking data is valuable. However, the PetSeizureCare Seizure Log is designed to capture exactly the fields that are most useful for research, so it makes contributing easier.
How much data do I need to contribute?
There is no minimum. Even a few months of consistent tracking is useful. The most valuable contributions come from pet owners who track over 6-12 months or longer, because seizure patterns and medication responses become clearer over time.
Will my vet know I participated?
Not unless you tell them. No veterinarian information is ever shared or published. However, we encourage you to share your tracking data with your vet — it helps them provide better care.
Is this a clinical trial?
No. This is a community data-sharing initiative. We are not administering treatments, recommending medications, or intervening in your pet's care in any way. We are collecting observational data that pet owners are already tracking.
Who is behind this?
PetSeizureCare is an independent initiative focused on companion animal health education, scientific translation, and caregiver support. We are not affiliated with any pharmaceutical company, veterinary clinic, or university. We are pet owners and caregivers building tools for other pet owners and caregivers.
How do I get involved?
We are actively developing the data submission process. Sign up below and we will reach out when we are ready to accept contributions. In the meantime, the most important thing you can do is keep tracking consistently.
Ready to contribute?
Join the waitlist to be notified when the data submission portal launches. In the meantime, keep tracking. Every entry matters.
Join the Research WaitlistScience moves forward one observation at a time. Yours counts.
Content on PetSeizureCare is for educational purposes only and is not veterinary medical advice. Always consult your veterinarian regarding your pet's health.